Tiktok:
instagram:
youtube:
  • 181986
    Ranking Global
  • 40049
    Classificação de país / região
  • 336.77K
    Seguidores
  • 1.55K
    Vídeos
  • 18.28M
    Gosta
  • Novos videos
    19
  • Novos seguidores
    1.86K
  • Novas Vistas
    3.51M
  • Novas curtidas
    201.05K
  • Novas resenhas
    1.11K
  • Novo compartilhamento
    1.4K

Jen  Tendência de Dados (30 dias)

Jen Análise Estatística (30 dias)

Jen Vídeos Quentes

Eight years since diagnosis, and Carter is showing us what resilience looks like. At 12 years old, he’s doing well for someone with Sanfilippo syndrome. And yes we did find out that he is type A which is considered to be the most common/severe. Every day is a reminder to cherish the moments that matter most. 💜 #pepememe #pepetheprawn #swipe #fyp #storytime #mco #diagnosis #diagnosisstorytime #sanfilipposyndrome #disney #disneyworld #tramatized #familytrip #medicallycomplex #carterschallenge #rarediseaseawareness #raredisease #momsofinstiktok #specialneedsmom #lifewithadisability #caregiverlife #advocatelikeamother #specialneedsfamily #sanfilippoawareness #sanfilippolife #parentingjourney
3.69M
254.23K
6.88%
0
1K
1.68K
Replying to @Rosa💀🖤 thank you for brining this up bit it’s important to jote that just becuase a child might have predominant eyebrows and a low nasal bridge. It does not mean that they have Sanfilippo syndrome which mnay parents are now worried about. #sanfilipposyndrome #thelook #facialfeatures #genetic #phenotype #attenuated #sanfilippoawareness #raredisease #rarediseaseawareness #medicaladvocacy #caregiverlife #specialneedsmom #momlifeunfiltered #geneticdisorder #disabilityawareness #notjustalook #diagnosisjourney #rarediseasecommunity #specialneedsadvocate #undiagnosed #medicalmom #rarediseasewarrior #advocatelikeamother #specialneedsawareness #invisibleillness
90.64K
3.4K
3.75%
0
79
21
Welcome to our morning routine. I promise you it’s nothing but organized chaos 😁 #morningroutine #ditl #mom #chronicpancreatitis #medicallycomplex #disabilityparenting #sanfilipposyndrome #portalveinthrombosis #tpn #lipids #centralline #medicalmama #sahm #caregiver #parenting #momlife #nofilter #sleptwithmymakeupon #sanfilippo #dayinmylife #purechaos #innerthoughts #qanda #learnoninstagram #carterschallenge
52.43K
1.05K
2%
0
22
2
Replying to @🧌 thank you for asking and wanting to know more typically genome test take on average between three and six months to get back #genetics #genome #genometest #test #sanfilippo #raredisease #fyp #qanda #themoreyouknow #medicallycomplex #parenting #MomsofTikTok #learnontikok #caregiver #sahm
46.59K
1.17K
2.5%
0
46
7
After we found out we were carriers m, we decided years ago not have any more biological children. That doesn’t mean that I dont sometimes think of the what if’s or hold space for the “dream” family I once had. To anyone else going theough this please know I see tou and hold you near and dear to my heart. You hold it all so well becuase you love your children and family fiercely ❤️ #momguilt #motherhoodunfiltered #navigatingaterminaldisease #rarediseasemom #sanfilipposyndrome #specialneedsparenting #parenting #breakingthestigma #griefandlove #medicallycomplex #anticipatorygrief #disabilityparenting #sahm #caregiver #carterschallenge
40.79K
1.94K
4.77%
0
23
15
Thankful for our team always taking such incredible care of C-Money #chronicpancreatitis #centralline #tpn #medicallycomplex #sahm #caregiver #carterschallenge #Home
40.02K
1.6K
3.99%
0
8
3
Junte-se ao nosso grupo TikTok Inspiration no Facebook
Compartilharemos os vídeos criativos mais recentes e você pode discutir qualquer dúvida com todos!
TiktokSpy from IXSPY
Ferramentas digitais para influenciadores, agências, anunciantes e marcas.
Empresa terceirizada independente, não é o site oficial da TikTok.
Copyright@2021 ixspy.com. All Rights Reserved